The Siegel Rare Neuroimmune Association Kicks Off Awareness Campaign

The Siegel Rare Neuroimmune Association (SRNA) has launched a new awareness campaign to coincide with the date its president's wife, Pauline Siegel, first developed symptoms of transverse myelitis (TM). Pauline's sudden collapse on July 31, 1994, marked the beginning of a lifelong battle with a rare neuroimmune disorder that left her paralyzed below the waist.

Initially, Pauline and her husband, Sandy, struggled to find information and support. This led them to establish The Transverse Myelitis Association, which became SRNA in 2019. The organization now provides resources and support to individuals affected by TM and other rare neuroimmune disorders.

SRNA recognizes the devastating impact of these disorders, including paralysis, vision loss, chronic pain, cognitive issues, and breathing difficulties. With no cure currently available, SRNA focuses on support, awareness, and research.

As part of its 30th anniversary, SRNA will share community stories over the next five weeks to highlight the resilience and determination of those living with these conditions. Stories like that of ten-year-old Francisco, diagnosed with acute flaccid myelitis at age three, illustrate the importance of early diagnosis and community support.

SRNA's mission includes supporting patients and their families, promoting awareness, building clinical networks, and advancing research. The organization also seeks donations for a matching campaign to further its efforts.